Tag: sensory sensitivity

A Calming Space

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Children’s of Alabama Expands Sensory Pathway For Patients With Sensory Sensitivities

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When Sladen Fisher got a bad cut on his earlobe at school, his mother, Jennifer Fisher, worried the sights and sounds of Children’s of Alabama’s Emergency Department would be too stressful for her son. That’s because Sladen has attention deficit hyperactivity disorder (ADHD) and sensory processing disorder.

At the time of the Sladen’s visit, Children’s of Alabama had just launched its Sensory Pathway, designed for patients with conditions such as ADHD, autism and Down syndrome. In 2016, the pathway began as a pilot project in the Emergency Department; however, it has since expanded to One Day Surgery and several inpatient units at Children’s of Alabama, including the Pediatric Intensive Care Unit, Pulmonary Care Unit and Special Care Unit. Future plans include expansion to ancillary and outpatient services.

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The pathway made a lasting impact on Sladen. Back at school a few weeks later, he presented a report about someone he considers a hero. He chose Children’s of Alabama Child Life Specialist Shelby Smith, who stayed by his side during his visit, explained his treatment in terms he understood and provided him with an iPad and fidget toys for distraction and comfort.

“In his mind, she was a hero, someone who went above and beyond to help him,” Jennifer said. She made what could have been an incredibly difficult situation so amazing. She really was our hero.”The pathway has been equally impactful on Children’s of Alabama, said Michele Kong, M.D. associate professor in pediatric critical care at the University of Alabama at Birmingham (UAB) Department of Pediatrics.

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“The pathway has been so empowering for our providers,” said Kong, who serves on the Sensory Pathway Task Force, also comprised of nurses, informatics specialists and child life specialists. Unit by unit, the task force provides education and training and is developing an online training module. The task force is also working with information technology specialists to flag patients with sensory sensitivities from the point of admission.

“We tailor education and training to suit each unit’s needs because each unit’s workflow and culture is different,” Kong said. “The success of the pathway is a direct reflection of our providers’ passion to learn. There’s buy-in from our providers because they know it’s good for their patients.”

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As a parent, Kong, too, knows how jarring a hospital visit can be for a child with sensory sensitivities. Her oldest son, Abram, was diagnosed with autism at age 4. The diagnosis inspired Kong and her husband, Julian Maha, M.D., to found KultureCity®, a nonprofit that works to “create acceptance and inclusion for all individuals with unique abilities,” according to its mission statement. In 2019, KultureCity was ranked fourth on Fast Company magazine’s list of the most innovative companies in the world. KultureCity not only partners with local organizations in Birmingham, but also with national organizations such as the NBA and NFL.

“We never imagined it would reach this scale,” Kong said. “It impressed on us that there’s a lot of power when a collective group of people have the same belief and passion for change.”

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Art Museum Offers New Tools for Visitors with Sensory-Related Disorders

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Credit: Zimmerli Art Museum/Rutgers University
Items inside sensory inclusive bags from KultureCity

Museum staff are trained to help visitors have a rewarding experience

New Brunswick, N.J. (Dec. 16, 2019) – The Zimmerli Art Museum at Rutgers University-New Brunswick is the first art museum in New Jersey to offer specialized tools to help visitors in the autism spectrum enjoy their visit without stressful sensory overload.

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The museum is collaborating with KultureCity, a nonprofit that has also worked with MetLife Stadium, to offer the training and materials needed to provide a more positive experience for those with autism, PTSD or other conditions that may cause sensory overload.

Free sensory inclusive bags include fidget tools (handheld objects that can be squeezed and manipulated to help focus the user’s sense of touch), cue cards that people with verbal impairments can use to communicate their needs and moods, noise-cancelling headphones and weighted lap pads to help direct the user’s feeling of their center of gravity.

“A common misperception is that autism is just a behavioral disorder, but it affects processes in our nervous system, which can create a feeling of vertigo or the sense of a lack of gravity,” said Elizabeth Torres, a Rutgers professor of psychology and director of The New Jersey Autism Center of Excellence at Rutgers–New Brunswick. “Astronauts who return from a long space mission are given weighted suits to bring back their center of gravity until they readjust. In a similar fashion, people with autism can’t always feel their own body weight. For some, the feeling is constant and very disorienting.”

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Through the partnership with Kulture City, Zimmerli staff received training on how to recognize when a visitor may have sensory needs, such as covering their ears or flapping their hands, and how to step in and offer them sensory support.

“We’re now better prepared to assist guests with autism and other sensory sensitivities in having the most comfortable and accommodating experience possible when attending any exhibition or program at the museum,” said Thomas Sokolowski, Zimmerli Art Museum Director.

Before adopting the new sensory tools, the Zimmerli offered customized group tours to visitors with autism and related conditions.  A KultureCity app is also available for download that displays available sensory devices at Zimmerli and how they can be accessed, as well as a customized social story, that helps visitors prepare for their visit

 “People with sensory disorders and their families now have the freedom to visit at any time and have confidence they will be assisted properly if they experience sensory overload or otherwise need support,” said Amanda Potter, curator of education at the Zimmerli.

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Potter said the sensory tools can help people of all ages. “There is also a necklace that visitors can wear that alerts staff to keep a close eye on a person so they don’t get separated from their group, which can happen not only to children but to people with dementia.”

While the sensory tools are a big first step to helping combat sensory sensitivity, Torres said museums can do more, such as partnering with autism centers and offering information cards to improve public understanding of autism-related disorders.

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“We are having exploratory conversations with Rutgers’ Center for Adult Autism Services to find more ways to help the autism community in New Jersey, including by providing job services and creating designated quiet spaces during crowded events, such as Rutgers Day,” Potter said. “Autism services are an area for growth, so we will work to expand our services. This is just the start.” 

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Rutgers-New Brunswick, is a leader in autism research and services, recently appointing its inaugural director of the Rutgers Center for Autism Research, Education and Services (RUCARES) and CHS-RUCARES, a clinical entity created through Rutgers’ partnership with Children’s Specialized Hospital. The university’s Douglass Developmental Disabilities Center includes an on-campus K-12 day school for children with autism. In addition, the university broke ground on a new state-of-the-art facility for the Rutger Center for Adult Autism Services, which provides employment, vocational training and other services and partners with Children’s Specialized Hospital to operate the New Jersey Autism Center of Excellence.