Tag: bullying

Families of Children With Autism Face Physical, Mental and Social Burdens

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Photo by Emma Bauso on Pexels.com

Caregivers face increased social isolation and emotional burnout .

Families of children with autism face high physical, mental and emotional burdens, are sometimes ridiculed and even accused of child abuse, according to a Rutgers study.

The findings were published in the International Journal of Autism & Related Disabilities.

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The study surveyed 25 caregivers of 16 children ages 2 to 20 with autism spectrum disorder to evaluate how their care affected their family dynamics, physical and mental health, and social functioning. The researchers also asked about the caregivers’ worries, daily activities, family relationships and insurance.

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“While the understanding of how autism spectrum disorders impact individuals has grown, the awareness of the burden on families who care for these individuals is less established,” said Xue Ming, a professor of neurology at Rutgers New Jersey Medical School. “Caring for loved ones with autism spectrum disorder is emotionally and physically taxing.”

The study found:

  • Emotional burnout was more likely in families with a child with low-functioning autism spectrum disorder and simultaneous conditions.
  • Social isolation was greater in families who reported significant emotional burnout.
  • Families with more than one caregiver experienced less emotional burnout and social isolation.
  • Families with a higher socioeconomic status tended to spend more money on medical treatments outside of their health insurance policy.
  • Families with an aggressive and irritable child tended to experience more social isolation and emotional burnout.
  • Simultaneous medical and behavioral disorders were common in these children.
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Nine of the 16 families in the study reported being ridiculed or accused of child abuse, which they said limited them from attending social events, visiting public places such as churches, supermarkets and restaurants, and using mass transportation.

“This suggests that communities need to improve their inclusiveness for families with children with autism spectrum disorder,” Ming said. “The study shows there is a need to raise public awareness of the burdens faced by these families and to alert medical providers to provide them with more support.”

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The findings also can be used to advocate for better resources for these children and families to improve their quality of life and reduce stress, she said.  

Other Rutgers co-authors included Binhao Wu, Max Yang and Apoorva Polavarapu.

Bullying children with autism

Photo by Quin Stevenson

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BINGHAMTON, NY – Children with autism spectrum disorder (ASD) are more likely to experience bullying than children without ASD and this bullying gets worse with age, according to new research from Binghamton University, State University of New York.

Hannah Morton, a graduate student in the clinical psychology PhD program at Binghamton University, aimed to conceptualize bullying in children with ASD in order to specifically identify different bullying and behavior types. Her research also emphasizes the need to establish better definitions of bullying behaviors.

“This research is important because it contributes to our understanding of how bullying is nuanced,” said Morton. “This variability means it is crucial to establish a definition for bullying and have standard assessments to know when and what types of bullying are occurring.”

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Morton, along with Binghamton psychologists Jennifer Gillis, Richard Mattson and Raymond Romanczyk, focused this study on teachers and parents of children with ASD, and community members without an ASD child. Participants took a survey containing 80 scenarios of interactions between two school-aged children. The scenarios varied from children ages four to fifteen. Sixty-four of these scenarios contained a type of bullying behavior (i.e. physical, verbal, interpersonal and cyber). The participants were randomly presented with 16 scenarios, and were asked to rate the severity of the interaction between the two children, as well as indicate which types of bullying were present.

Results showed that a child’s increased age predicted higher bullying severity ratings. The findings also showed that bullying among older children with ASD is viewed as especially problematic by their parents, and that perceived bullying severity differed according to the type of bullying behavior (i.e., physical, verbal, interpersonal, and cyber). 

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“This paper emphasizes that bullying is a really broad construct,” said Morton. “What any two people might be referring to when they use the term ‘bullying’—regardless if they are parents, teachers, researchers, etc.— likely differs, and perhaps in subtle ways.”

Morton plans to further her research on this topic by focusing specifically on the bullying behaviors that children with ASD experience compared to children without ASD.

This research was conducted through Binghamton University’s Institute for Child Development, which offers early intervention services, speech services and more to children and families in the Binghamton region. 

The paper, “Conceptualizing bullying in children with autism spectrum disorder: Using a mixed model to differentiate behavior types and identify predictors,” was published in Autism.